Riders raise awareness for rare disease
Following a shocking diagnosis, the Henegar family is raising awareness for Duchenne Muscular Dystrophy.
Six years ago, Braedan, 12, was diagnosed with the disease.
Since then, his family has hosted Jett Riders, teens who bike state to state raising awareness.
They'll ride 650 miles from Lake Erie to Point Pleasant Beach, New Jersey.
They marked the start of their trip by dipping their tires in Lake Erie.
During the trip, the teens meet with families affected by Duchenne's.
"Along the way, they meet people and they talk about DC and how it's affected them," said Tammy Henegar, Braedon's mom. "Some of them have brothers, cousins.. friends that have Duschenne."
Duchenne's Muscular Dystrophy breaks down muscles so they can't get the nutrients they need.
Since the heart is a muscle, the disease is often deadly.